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Down Syndrome Program News
Volume #1, Newsletter #8 September 2015
 
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Dear Friends of the Down Syndrome Program,

We hope everyone enjoyed the summer and are having a smooth transition back to school!  There are many events available this fall that are listed below.  We hope you can join us! 
 

 

Sincerely,

Dr. Nicole Baumer and Dr. David Stein
Co-Directors, Down Syndrome Program
Boston Children's Hospital


PHOTOS NEEDED OF ADOLESCENTS AND YOUNG ADULTS!

We are in need of photos of this age group for upcoming informational brochures and guides!  If you would like to send in a picture for possible use, please email Angela.
 
COMPLEX NEEDS SUPPORT GROUP!  COPING SKILLS!
Saturday, September 12, 2015 from 10am – Noon

Come help us to learn how to best support your needs, network with other families, share resources, and meet staff from both MDSC and the Children’s Hospital Down Syndrome Program.

Our facilitator will be Mary-Frances Garber, MS, CGC who has worked closely with the MDSC Family Support for several years. Mary-Frances is a practicing genetic counselor and also has a private professional supportive counseling practice. Mary-Frances will lead the group in a conversation about what supports are (and would be) helpful for parents, during hospitalizations, new diagnoses, and day-to-day life that may be more challenging that “just Down syndrome.” She will also lead us in a discussion around self-care, coping skills and balancing life.

Please join us for a warm, supportive environment of sharing and support!

Note Location: Boston Children’s Hospital – WALTHAM location

9 Hope Avenue, Waltham - Conference Room A (FREE parking)

All family members welcome!  Volunteers available for children’s recreation and support

RSVP to Sarah Cullen, MDSC at (781) 221-0024, ext. 206 or scullen@mdsc.org with the names of each person who will be attending and whether or not you are bringing your child (limited child care available) – RSVP required!!


Refreshments will be served (please let us know with RSVP if you need gluten free or other dietary accommodations)
 
FREE SIGN LANGUAGE WORKSHOP!

October 17th at 3pm!  Join us for a free "Introduction to Sign Language" workshop!  This workshop will provide an introduction to using American Sign Language vocabulary with your baby or child to facilitate early communication. You will learn when to start, what signs to start with, and strategies for incorporating sign language into your daily routine. This workshop is taught by Lane Rebelo, LCSW, owner and instructor of Tiny Signs of MetroWestBoston. Lane is certified as a Master Instructor with the Signing Time Academy and is also a licensed social worker.
If you want to join us in this workshop, please RSVP to Angela before October 10th! We will be able to have 20 families attend. Children are welcome to attend so they can be part of the learning! :)
 
SAVE THE DATES!  MARK YOUR CALENDAR NOW!

October 3rd will be the next Statewide Transition Conference!  This full-day statewide Transition conference has been specifically planned for families of children with disabilities between the ages of 14 and 22 who are transitioning from school into the adult world.

November 18th will be the next MDSC Educator's Forum!  Great day full of info!
 
LEADERSHIP TRAINING SERIES

Mass Families Organizing for Change is announcing their Fall schedule for trainings across the state!  The Family Leadership Series has a three-fold purpose. The first is to offer information about “best practices” for people with disabilities. The second is to assist families in creating a vision for their family member and a process to achieve the vision by incorporating that information. The third is to develop family leaders who will advocate at the local and state level to improve the lives of individuals with disabilities.  T
he Family Leadership Series is organized into three (and in some regions, four), two-day workshops.Check out the plan on their site to see when it's coming near you! 
 
CLINIC APPOINTMENTS!

Is your child due for their annual clinic visit?  Appointments this fall are filling up quickly!  As you know, we customize each child's visit, so reach out and let us know what we can do to help plan your appointments.  Our Down Syndrome Program providers are seeing patients on Tuesday and Wednesday afternoons, and our interdisciplinary baby/toddler clinic is on Thursday mornings.

More information about our clinics are available on our website.


Please contact Angela to discuss your needs and set up an appointment!

Our Vision

All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission

To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.