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Down Syndrome Program News
Volume #1, Newsletter #7 June 2015
 
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Dear Friends of the Down Syndrome Program,

As we start the summer season, we have a lot to be thankful for excited about. Our Eversouce Walk for Children's Hospital was a huge success! 

We are also very excited to announce that we have hired Kelly Matter, a self-advocate who will join the program as an apprentice to Nate Simons, who is now an employee after X years of outstanding work as an intern.

This month we are also excited to attend and present at several conferences. In addition to all of the excitement with new hires and conferences, we are also very excited to announce that we will soon be starting a new clinical research study in children ages 6-11 years with Down syndrome. Stay tuned for more details! As always, safety is our top priority, and we are dedicated to offering research opportunities to advance our understanding of Down syndrome in order to improve quality of life and well-being for our patients and families.

Again, we thank you for all of your support and look forward to an exciting summer ahead!

 

Sincerely,

Dr. Nicole Baumer and Dr. David Stein
Co-Directors, Down Syndrome Program
Boston Children's Hospital


INTRODUCING KELLY MATTER

We are excited to announce that we have hired Kelly Matter, a self-advocate who will join the program as an
apprentice to Nate Simons, who is now an employee after 3 years of outstanding work as an intern. Please join us in welcoming Kelly and congratulating Nate! Our self-advocate and apprenticeship positions reflect our commitment to supporting employment and vocational training for individuals with Down syndrome. Nate and Kelly both embody our mission to help each individual with Down syndrome reach their full potential.

Kelly comes to us from Hopkinton, MA.  She is a graduate of the Riverview School.  She also has training from Milford Regional Medical Center.  Kelly has worked on the recycling team for the Boston Red Sox, Price Chopper, Milford Regional Medical Center and the Hopkinton Senior Center.  We are SO excited for her to join our team in July!
 
CONFERENCES AND MEETINGS

This month we are also excited to attend and present at several conferences. Dr.
Stein
 attended the first-ever Trisomy 21 Research Society conference in Paris, France, where he presented our new study results about educational inclusion of children with Down syndrome.

Drs. Baumer, Stein, Davidson, and our coordinator, Angela Lombardo, will also be attending the Down Syndrome Medical Interest Group (DSMIG-USA) meeting in Arizona. Our team will be presenting about several topics including: clinic design, depression and anxiety in DS, inclusion, and mental health challenges during transition. The team will then stay in Arizona to attend the National Down Syndrome Congress meeting, where Drs. Stein and Baumer will present on behavior management, and Dr. Davidson will be teaching yoga classes on Saturday and Sunday morning to conference attendees!
 
HUGE THANKS TO ALL "TEAM DOWN SYNDROME" WALKERS FOR YOUR SUPPORT AND EFFORTS!!!
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Our Vision

All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission

To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.