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Down Syndrome Program News
Volume #1, Newsletter #3 February 2015

In This Issue
FEATURED CLINICIAN

SPEAKER SERIES

WE ARE HIRING!

FCSN CONFERENCE

WORLD DS DAY!

REELABILITIES

MDSC CONFERENCE

FINANCIAL PLANNING
RESOURCE NEWS

APPT NEEDED?

FUNDRAISING

VISION and MISSION
 
CONNECT WITH US!

 

 

VISIT OUR SITE

EMAIL US!

CALL 857-218-4329


 
Testimonials

Living in California, I don't expect to participate in the many things your clinic offers, but the webinars are very interesting!
from a dad

Thank you so very much for your assistance with this. I have been trying to help this family with guardianship for two months now and have been running into so many roadblocks. And now, with one phone call, I find the person I should have been speaking to all along!
from a pediatrician

Dear Friends of the Down Syndrome Program,

The Down Syndrome Program at Boston Children's is off to a great start for 2015, despite this hectic winter! We are looking forward to several exciting events, celebrations, and conferences coming up in March. These include World Down Syndrome Day on 3/21 and the Massachusetts Down Syndrome Congress (MDSC) spring conference, where several of our team members will be presenting! This month, we are thrilled to highlight Dr. Marc Ackerman, our very talented orthodontist who specializes in working with children with disabilities, including Down syndrome. We are very lucky to have Dr. Ackerman as part of our team!
 

Sincerely,

Dr. Nicole Baumer and Dr. David Stein
Co-Directors, Down Syndrome Program
Boston Children's Hospital


FEATURED CLINICIAN
Marc Bernard Ackerman, DMD, MBA, FADPD, FACD
Director of Orthodontics

Dr. Ackerman specializes in the orthodontic treatment of children with dentofacial deformity, intellectual and physical disabilities and sleep disordered breathing. He received his DMD from the University of Pennsylvania School of Dental medicine in 1998 and his certificate in Orthodontics from the University of Rochester-Eastman Dental Center in 2000. Dr. Ackerman later completed his MBA in Executive Leadership at Jacksonville University Davis College of Business in 2009 and his Fellowship in Medical Ethics at Harvard Medical School in 2014.

He is a Fellow of the Philadelphia College of Physicians, the Academy of Dentistry for Persons with Disabilities, and the American College of Dentists.  Dr. Ackerman received the University of Pennsylvania School of Dental Medicine Alumni Award of Merit in recognition of his loyalty to Alma Mater, leadership in the dental profession and community involvement.

Dr. Ackerman is the Director of Orthodontics at Boston Children’s Hospital and teaches residents in both pediatric dentistry and orthodontics for Harvard School of Dental Medicine.
Dr. Ackerman has published numerous peer-reviewed articles in orthodontics and professional ethics and his monograph, Enhancement Orthodontics: Theory and Practice, was released in 2007 by Blackwell-Wiley.

He is a co-recipient of the 2004 B.F. and Helen E. Dewel Award from the American Journal of Orthodontics and Dentofacial Orthopedics which is given annually to the highest-rated clinical research article published in the previous year. Dr. Ackerman has been the Editor-in-Chief of Special Care in Dentistry Journal since 2013.

Allen C. Crocker Speaker Series - March 11, 2015  6:00pm


Director of Orthodontics, Marc Bernard Ackerman, DMD, MBA, FADPD, FACD will do a very informative presentation on "Orthondontic Care and Children w/DS"  

Everyone is invited to attend this presentation in the Folkman Auditorium at Boston Children's Hospital.  All our talks are simulcast so you can also watch live from your home as well that night.  There will be time at the end when people viewing from home can type in questions for presenters.  If you want to watch our presentation at the time it's being aired, click here.  All talks are archived and can be viewed at your leisure on our website.

NOW HIRING!  Apprenticeship Program in the DS program!

We are THRILLED about this new exciting Apprenticeship that we will be offering to a young adult with Down syndrome!  Read the job description on our site and please pass on to anyone who may be interested!
 

FCSN - Visions of Community 2015 – Register Now!
Saturday, March 7, 2015 | Seaport World Trade Center, Boston

So many reasons to attend this amazing conference!  Our very own, Drs. Baumer and Davidson will both be presenting workshops!  
  • Attend your choice of workshops about early childhood, special education, transition to adult life, special healthcare needs, managing challenging behaviors, mental health services and supports, inclusion, autism, fostering friendships, assistive technology, stress management for parents, parent leadership, and more.
  • Meet Federation staff and learn about all the projects at the Federation
  • Visit our exhibit hall with parent organizations, vendors, and lots of FREE resource
  • Network, network, network!
WORLD DS DAY!!!!  March 21st!  HOW ARE YOU CELEBRATING?

Join our DS Program Team members participate in Random Acts of Kindness!  We will be following the idea from the National Down Syndrome Congress!  Do some Random Acts of Kindness, pass out information cards about World DS Day, take photos and blast your actions online on our Facebook page

Some team members will also be attending this event below......

COME CELEBRATE WORLD DOWN SYNDROME AWARENESS DAY WITH 21 FrienDS

Saturday , MARCH 21, 2015… 6:30pm-Midnight

FROM 6:30pm-8:00pm: Light Appetizers and Cash Bar  Trio featuring Mike Jupin, Brian Cass, and Adam Colucci

FROM 8:00pm- Midnight: Cash Bar and Music Entertainment by: BETTER DAZE & FRED FELICIANO AND CHRIS FARIAS    Raffles and Silent Auction announced beginning at 10:00pm

THERE IS NO CHARGE TO ATTEND THIS EVENT!

RACHEL’S LAKESIDE, 950 STATE RD. DARTMOUTH,MA

For more information please contact: Kim Legendre 508-989-2706
Reelabilities - Film Festival

A wonderful event that highlights some amazing films!  Check out the schedule of shows and locations!  It's taking place now through March 2nd in Boston area!
Massachusetts Down Syndrome Congress - Annual Conference!  March 28th!


Read all about the workshops!   More details about the day here!


Our team members will have a strong presence!

Angela Lombardo- New Parents: Sharing Our Stories

Nicole T. Baumer, MD, M.Ed, and David Stein, PsyD - When it’s More than Just Down Syndrome – Neurodevelopment and Co-Occurring Conditions

Leah Cohen RN, MSN, CPNP - Toilet Trouble: A Stepwise Approach to Potty Training
Also come by and visit our Boston Children's DS Program booth!  Team members will be there throughout the day to greet and chat with families! 
FREE FINANCIAL PLANNING PRESENTATION

Nicholas S. Carlin, CFP®, CRPC®, APMA® is the father of a 6 year old boy with Down Syndrome, a local Certified Financial Planner and Chartered Special Needs Consultant. He developed a Special Needs Financial Planning Presentation and will be presenting in a seminar Saturday, March 28th 11:30am at Pappagayo in Charlestown. He will discuss the basics of financial planning, government benefits and qualification for them, as well as considerations and strategies for estate planning.

This presentation will be free and open to the public and have time available for questions.
Space is Limited, so if you would like to attend an RSVP will be required by Wednesday, March 25th
Please RSVP ASAP to Marianne.X.Sheppard@ampf.com or 617 580 4120. The presentation will be held in Charlestown (Boston).
RESOURCES TO KNOW ABOUT!


RESOURCES - A wonderful site full of info about events, news, and happenings in the "special needs" world in Massachusetts!
 http://www.spedchildmass.com/


DS-AUTISM Yahoo Chat -  This wonderful supportive group holds a live chat room on the second Monday of every month at 8:30 pm.  Anyone interested in joining this group, can email Charlotte Gray at morningtravelers2@yahoo.com!

NORTHERN NEW ENGLAND DS CONGRESS -  The Northern New England Down Syndrome Congress serves NH families. They offer play groups for younger children in the Southern NH area, connections to other families throughout the state, family support grants for educational and medical costs that are not covered by insurance, and a First Call program that connects new families to trained parent volunteers. To learn more, please check out their website at www.nnedsc.net
or email info@nnedsc.net to talk to Jenn Bordis, the president.

Clinic Appointments!

Is your child due for their annual visit to our DS Clinic?  If so, please reach out to Angela to get help coordinating appointments to fit your child's needs.  We offer appointments on Tuesday and Wednesday afternoons for all ages.  We have our Infant/Toddler clinic on Thursday mornings.

THANK YOU FOR YOUR SUPPORT!

Our team would like to thank you all for your continued support!

We have many more ideas for enhancing our existing programs and to develop new activities to enrich the lives of our patients and families. The Boston Children’s Hospital Down Syndrome Program depends on philanthropic funds to provide free supports and services to our families, including support groups, the Allen C. Crocker speaker series, our Patient Liaison position and apprenticeship program, and Sign Language DVDs for all of our new families.

Click here to learn more about how you can help support our program and our families!

Do you need something to get your mind off this awful weather?  Are you in need of summer time reminders?  It's sign up time for our Walk for Children's!  Check it out!  June 14th!  More info to come!
Our Vision

All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission

To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.