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Down Syndrome Program News
Volume #1, Newsletter #2 January 2015


In This Issue
Featured Clincian

January Speaker Series

Complex Needs Group

Sign Language Class

Conference News

Need an Appt?

Resource News

Testimonials

Thank You!

Vision and Mission
 



CONNECT WITH US!


   

   

VISIT OUR SITE

EMAIL US!

CALL 857-218-4329











Dear Friends of the Down Syndrome Program,

2015 is off to a great start, with an incredibly busy and vibrant clinic, and some very exciting research developments on the horizon. We are thrilled to highlight Dr. Emily Davidson, our Director of Prenatal Services, who continues to deliver the highest quality care, with unparalleled compassion, to patients of all ages in our clinic.


Sincerely,

Dr. Nicole Baumer and Dr. David Stein
Co-Directors, Down Syndrome Program
Boston Children's Hospital


                          FEATURED CLINICIAN
             Emily Jean Davidson, MD, MPH, RYT



Dr. Davidson is celebrating her 20th year at Children’s Hospital and 13th in the Down Syndrome Program. Over the past 5 years, she has been seeing families who have received a diagnosis of Down syndrome in the Advanced Fetal Care Center. This part of our program has grown substantially and she is excited to continue to expand and develop it further in her new role as Director of Prenatal Services for the Down Syndrome Program. She values the opportunity to provide support and information to families. Dr. Davidson works with infants and toddlers in our Thursday morning interdisciplinary clinic and in the “big kids” clinic alternates weeks seeing patients individually and precepting our fellows in developmental behavioral pediatrics and nurse practitioner, Sherry Tsai.

Dr. Davidson is one of a handful of physicians who have appointments in two different departments. In addition to her appointment in the Developmental Medicine Center, she is also an Attending Physician in the Complex Care Service (CCS) in the Division of General Pediatrics. In CCS, Dr. Davidson works in the Cerebral Palsy Program seeing children with complex medical needs. She also serves as the Pediatric Medical Director for the Community Medical Alliance program supervising nurse practitioners who provide case management and clinical care to children with complex medical needs who are in foster care.

Dr. Davidson is passionate about helping kids be active and healthy and is also the Director of Adventure Challenge, a community service program at Boston Children’s that matches children with disabilities in the Boston area with volunteers to do exercise in the community.

In her “spare” time, Dr. Davidson completed a 200-hour yoga teacher training program at South Boston Yoga and last year began teaching yoga at Boston Children’s Hospital primary care at Martha Eliot. She is currently completing another yoga training program – the Urban Zen Integrative Therapy program – and is getting ready to study the effects of integrative therapies (Reiki, aromatherapy, restorative yoga, contemplative care) on hospitalized children. She is enjoying practicing these techniques with her friends and family and is looking forward to bringing them into the clinical arena.
Free - Special Needs Financial Planning Presentation - Jan 24th!!!  RSVP ASAP!
Nicholas S. Carlin, CFP®, CRPC®, APMA® is the father of a 6 year old boy with Down Syndrome, a local Certified Financial Planner and Chartered Special Needs Consultant. He developed a Special Needs Financial Planning Presentation and will be presenting in a seminar Saturday, January 24th 11:30am at Pappagayo in Charlestown. He will discuss the basics of financial planning, government benefits and qualification for them, as well as considerations and strategies for estate planning.

This presentation will be free and open to the public and have time available for questions. Space is Limited, so if you would like to attend an RSVP will be required by Wednesday, January 21st.  Please RSVP ASAP to Marianne.X.Sheppard@ampf.com or 617 580 4120. The presentation will be held in Charlestown (Boston).

Pappagayo, City Square, 1 Chelsea St., Charlestown, MA 02129

 
Allen C. Crocker Speaker Series - January 28, 2015  6:00pm


Dr Baumer and Dr Stein will be presenting together on "Behavior and Down syndrome- Multidisciplinary Assessment and Intervention"  

Everyone is invited to attend this presentation in the Folkman Auditorium at Boston Children's Hospital.  All our talks are simulcast so you can also watch live from your home as well that night.  There will be time at the end when people viewing from home can type in questions for presenters.  If you want to watch our presentation at the time it's being aired, click here.  All talks are archived and can be viewed at your leisure on our website.
Down Syndrome Program and MDSC - Complex Needs Group on Feb 7th

The MDSC and the DS Program are excited to host the DS-Autism Connection Chapter of MA at our Complex Needs Group on February 7th from 12:30-2:30pm.  Pizza and refreshments will be provided.  Please RSVP to Sarah Cullen at MDSC.  Join us for a wonderful opportunity for networking, resource sharing and information!  
SIGN UP NOW!  Free Sign Language Workshop on Feb 28th

We are offering a FREE Sign Language workshop on February 28th from 3-5pm.  This workshop will provide an introduction to using American Sign Language vocabulary with your little one to facilitate early communication. You will learn when to start, what signs to start with, and strategies for incorporating sign language into your daily routine.

This workshop is taught by Lane Rebelo, LCSW, owner and instructor of Tiny Signs of MetroWestBoston. Lane is certified as a Master Instructor with the Signing Time Academy and is also a licensed social worker.  If you want to join us in this workshop, please RSVP to Angela. We will be able to have 20 families attend. All family members are welcome to attend so they can be part of the learning! :)
VISIONS OF COMMUNITY 2015 – March 7th

The Federation for Children with Special Need’s Annual Conference is a wonderful opportunity to attend your choice of workshops about early childhood, special education, transition to adult life, special healthcare needs, managing challenging behaviors, mental health services and supports, inclusion, autism, fostering friendships, assistive technology, stress management for parents, parent leadership, and more, meet Federation staff and learn about all the projects at the Federation, visit the exhibit hall with parent organizations, vendors, and lots of FREE resources, and network, network, network!

We are excited to have two of our providers presenting on very important topics!

Behavioral Management in Developmental Disabilities: Understanding and Managing Challenging Behaviors by Nicole Baumer, MD This presentation aims to help parents better understand their child’s challenging behaviors, to describe the evaluation process, and to review strategies to help prevent and manage challenging behaviors.

Calm in the Chaos: Self-Care for the Caregiver by Emily Jean Davidson, MD, MPH, RYT This interactive seminar will include an overview of the impact of caregiving on caregiver health and brainstorming about barriers to self-care, followed by a chair yoga and meditation session appropriate for any experience level and health status. Aromatherapy and Reiki will also be shared, as well as practical tips for self-care in the midst of the busy-ness of caregiving.

Sign up here: http://fcsn.org/voc2015/
 
Great Resource for News, Updates and Events!

The AccessLetter is a bimonthly newsletter produced by the Cambridge Commission for Persons with Disabilities, part of the Department of Human Service Programs.  It is FULL of news, local events, and items of interests. You can sign up on their site!
 

Clinic Appointments!

Is your child due for their annual visit to our DS Clinic?  If so, please reach out to Angela to get help coordinating appointments to fit your child's needs.  We offer appointments on Tuesday and Wednesday afternoons for all ages.  We have our Infant/Toddler clinic on Thursday mornings.

Testimonials

I just wanted to let you know that the DSP Speaker Series online has been really helpful & a great resource to families who live out of state.
from a mom

I have watched most of the behavior presentation. My son with DS is 13 and has an additional diagnosis of ADD. I highly recommend the presentation and have asked those who work with him in the school system to watch it. It's everything we've learned the "hard way" and more. Every parent should take the time to watch it. I'd like to add that, while the content is exceptional, the online presentation was also very well done.
from a mom

I wanted to say thank you for allowing me to come to the clinic yesterday. It was such a great experience for me. I learned a great deal in just the few hours that I was there. It has been my favorite part of my LEND experience thus far.
from a student

You're the best! We are so lucky to have you! Please thank nutrition, PT and Speech profusely! There's a reason why we come all the way to Boston! Because you guys are second to none!
from a mom

 
THANK YOU FOR YOUR SUPPORT!

Our team would like to thank you all for your continued support!

We have many more ideas for enhancing our existing programs and to develop new activities to enrich the lives of our patients and families. The Boston Children’s Hospital Down Syndrome Program depends on philanthropic funds to provide free supports and services to our families, including support groups, the Allen C. Crocker speaker series, our Patient Liaison position and apprenticeship program, and Sign Language DVDs for all of our new families.

Click here to learn more about how you can help support our program and our families!
 
Our Vision

All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission

To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.